Bulldogs move faster than you expect. They look awfully ungainly with short legs, but my English bulldog Izzy can probably outsprint most people. Of course, she sleeps 80% of the time, storing up that energy for those manic moments. But, I find a similarity between the two of us. I sleep an awful lot myself. And, then I sprint around trying to get the most done before my next narcoleptic relapse.
I find one of the worst side effects of carcinoid is having to sleep more. Being a night-owl, it’s hard to make it to my early morning appointments without a lot of caffeine. Here’s my thinking, I know that caffeine is not good for cancer patients. I don’t recommend it. However, I draw a line between the drugs that I’m prescribed and my recreational drugs. I figure that for six years I’ve been good about taking my aredia infusion every 28 days for bony metastases, and taking Sandostatin to control my symptoms. So, I’m entitled to my recreational drugs—caffeine, Halloween candy (buy extra so it lasts you all year), fried noodles. I don’t tell my oncologist, but, as supportive and compassionate as he is, I think he’d laugh and say enjoy!
I received an e-mail from a patient about the current QuickPoll—for this patient the problem is with exercising at all. She gets massive headaches when she exercises. Who else out there has trouble with exercising because of carcinoid? Post your comment and let her know how you’ve overcome feeling lousy while you exercise. Or maybe you haven’t. Fill us in!
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Caring for Carcinoid Foundation
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- Always listen to the experts. They'll tell you what can't be done and why. Then do it. Robert Heinlein
- Right in the difficult we must have our joys, our happiness, our dreams; there against the depth of this background, they stand out...Rainer Maria Rilke
- If not us, who? If not now, when? John F. Kennedy
- I just want to leave a committed life behind. And that's all I want to say. Martin Luther King, Jr.
- Don't let the noise of others' opinions drown out your own inner voice...have the courage to follow your heart and intuition. Stay Hungry. Stay Foolish. Steve Jobs
- I've learned that you shouldn't go through life with a catcher's mitt on both hands; you need to be able to throw something back. Maya Angelou
- I've learned that even when I have pains, I don't have to be one. Maya Angelou
My Photos
Sylvie
Sylvie
Sequoia Natl Park
Snow in Colorado
Vieques
Running in Vieques
Family in Paris
Family in Paris
CFCF Chicago Marathon Team Celebrates
Katie and Nancy-Chicago Marathon
CFCF Team Celebrates
Plitvice
Vis
Boston sunrise
My bulldog Izzy
Barcelona
Celebrating with Anne Doyle
2 comments:
Enjoy reading your blog. After having a chemoembolization in May, I am finally getting back on track with exercise. I am attending a cancer/cardio group at our local YMCA (which is wonderful), and I do stretches with the group, and either walk or participate in a water aerobics class afterward. Sometimes I walk a mile, maybe less or more. The water aerobics really is a workout for me, but I feel better afterward! I have liver metastases, but currently am feeling well. Fatigue is always there, but I cope, and in my case, exercise helps me to feel better and more in control.
I'm truly impressed by how you manage to squeeze in so much, with the challenge of sleep limitations on top of everything else! Thank you for your incredible hard work on the foundation. Go, Nancy! My friend was just diagnosed with a metastasized carcinoid tumor and I came here to find out more. I'm going to pass on the link to him and his wife--I'm sure it will help for them to be in touch with others who face the same issues. Take care.
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